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This campaign was born out of desire to raise awareness of the muscle wasting issues inherent to living with cystinosis in adulthood.
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Individuals with cystinosis often have to work a little harder to build and maintain muscle mass, and more research is needed into how to prevent specific muscle wasting that seems so unavoidable despite this hard work. Represent yourself or your loved one with cystinosis by showing that you are not just strong--you are #cystinosisStrong