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What makes this charity team so unique is the RARE Community Partner program. Each runner is paired with a partner (patient, family, advocate, or other) and builds a relationship with them throughout their training and marathon race. This is the foundation for inspiration as they train to run 13.1 or 26.2 miles!
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For the ninth consecutive year, runners will join together to raise awareness for rare diseases while fundraising to support undiagnosed patients. This special team is made up of passitionate and committed individuals seeking to make a meaningful difference for the rare community.
The funds raised by the Running for Rare Team will support the NORD/Undiagnosed Diseases Network (UDN) Patient Assistance Program. This program provides financial assistance to families who have exhausted all other alternatives for seeking a diagnosis. NORD will help cover the basic diagnostic testing needed for patients and families to apply into the Undiagnosed Diseases Network.
