Loading
 
Find a Campaign
Filters

This Campaign Has Ended

Check out the ending numbers below. If you missed your chance to support this campaign, CONTACT US and we may still be able to help you out. If not, your other option is to reach out to the campaign creator and request a repost.

2018 Rare Disease Day-WAGR-IWSA

Show Your Rare!  Show You Care!  Support Rare Disease Day, WAGR, and the IWSA.

Product will arrive after Rare Disease Day.
  All funds raised will go towards IWSA
Time left to buy
$277Raised
$250goal
65Sold

This campaign is closed. Send a message to the creator of this fundraiser and ask them to relaunch it.

Full story

Rare Disease Day occurs on the last day in February each year to promote awareness amongst the  public and decision-makers about rare diseases and their impact on patients' and families' lives.

My son Joshua, is one of those impacted by a rare disorder, WAGR syndrome.  In fact, it is so rare, it affects only one in a million children.

Kids born with WAGR syndrome face an uphill battle.  They have serious eye problems and often struggle with learning to walk, talk, and do all the things other kids do.  Half of them will have childhood cancer before their 3rd birthday.

But every kid with WAGR syndrome is a fighter and they work hard to live and grow.  More importantly, they share beautiful smiles and give lasting hugs.  

The International WAGR Syndrome Association (IWSA) serves as a source of hope, support, and information, so the diagnosis doesn't have to be faced alone.  Indeed, it is their desire to celebrate the joy, love, and courage our loved one with WAGR/11P deletions give to us.

By donating to the IWSA, you can feel the hope and share in the pride.  Your donation helps to promote awareness, stimulate research, and support families affected by this disorder.

Now YOU are "one in a million" too!  Thank you for showing your rare and showing you care!

Products specifications
(non-charitable) All funding towards (non-charitable) All funding towards
Contribution Goal Contribution Goal
Share With Your Friends