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Elijah's Gift 2016-2

Help us help families affected by Joubert Syndrome by raising money for the Joubert Syndrome Foundation!


  All funds raised will go towards Joubert Syndrome and Related Disorder Foundation
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Full story

`We have four children affected by Joubert Syndrome. Lily and Bella are 9, Rylee is 6, and Elijah would have been 2 on December 13th. Since our twins' diagnosis seven years ago, the Joubert Syndrome Foundation has been invaluable to us. Having the opportunity to connect with other families through the foundation has made a huge impact in our lives.

When we lost Elijah, the foundation was there for us again. When you join us for Elijah's Gift you are helping make sure that many families just like ours have the care and support available that would not exist without the JSRDF.

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