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My son Dalton was diagnosed with Noonan Syndrome. When he was 3 months he got so sick he was hospitalized, and put on life support. I was told we may lose our son. Not knowing what was wrong was so hard. He had more surgeries than I can count. He is seen by numerous specialists. Finding out he has Noonan Syndrome, which most of his doctors never heard of it, they are learning from Dalton. I am still learning too. I was told he wouldn’t make it to his first birthday and if he did he wouldn’t walk, eat on his own, or talk. I was not about to give up on my son. I went to the internet for help and done everything I could to help my son succeed. By the grace of God my son is now 10 years old, he can eat on his own, he can walk, he can talk. He is delayed in his development but he beat the odds. He has been through more than any adult have their whole life and he is still going. Dalton has Atrial Septal Defect, Pulmonary Valve Stenosis, Left Ventricular Hypertrophy, his Intestinal Lymphangectasia is under control as of today. As a baby he was tube fed. He has Speech Therapy and Occupational Therapy every week. Today along with his Hypertrophic Cardiomyopathy he was diagnosed with Wolff-Parkinson-White Syndrome which means he has an extra electrical pathway of the heart. This causes rapid heart rate.  I was told it is causing a few different heart arrhythmias. They are Paroxysmal Supraventricular Tachycardia and Ventricular Tachycardia. With these heart arrhythmias can bring on sudden death. The one thing we can do to see if it can help control the heart arrhythmias is changing his medication and a heart catheter. The surgery can be a big risk to do because of all is health issues and the chance of opening up old wounds. Also not being able to wake him up from the anesthesia is a risk. On the other hand doing nothing is a given that something will happen to our little angel. This is the most hardest decision I ever had to make knowing whichever way I go I have a chance of losing my son. I do feel it is better to do something than not doing anything but it don't make it any easier. The Doctor gave us a prescription to get an AED (Automated External Defibrillator) but of course the insurance is against it, so looks like it will have to come out of pocket. I was told of some other devices that can help but again none is covered by insurance. Even with all Dalton has been through and going through he is the strongest person I know. You can look at him and don’t know all the pain he has or even know he is sick like he is. Dalton is forever my hero. With the new challenges Dalton is going through please pray for him to keep his strength and for me to have the knowledge to make the right decisions when it comes to Dalton's care.