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Baby Lily was diagnosed at the age of 4 months with an extremely rare auto immune disease called Langerhans Cell Histiocytosis (LCH).  LCH is the most common of the histiocytic disorders and occurs when the body accumulates too many immature Langerhans cells, a subset of the larger family of cells known as histiocytes.  Langerhans cells are a type of white blood cell that normally help the body fight infection.  In LCH, too many Langerhans cells are produced and build up in certain parts of the body where they can form tumors or damage organs.  The cause of this disease is unknown. Scientific discussions on the definition of LCH continue to be debated in terms of its classification as either an immune dysfunction or a rare cancer. Since 4 months old we have been going to Ann Arbor Childrens Hospital weekly for blood work, urine tests, x-rays, and most recently an MRI to make sure her disease is not spreading (originally skin only). She was on steroids for 6 weeks which helped for about 2 weeks and since then the LCH is at a stand still. Her oncologist wants to move forward with treatment plan since the steroids are no longer effective and has scheduled for Lily to recieve a port placed and she will then undergo 1 year of chemotherapy. All the love, help, prayers, and support mean the world to Lily and her family. We have created this fundraiser to 1. Help spread awareness of Lily's disease and 2. To help allieviate some of the medical costs that are quickly accumulating and the travel costs to Ann Arbor weekly.

Thank you so much

The McCotter's